Maria’s still phlegmy but doesn’t have a fever. She does this “open my mouth until I gag on the phlegm” thing that’s a bit odd and icky.
Those red blotches are still there, ten days and counting. Cathy took her to the orthotics specialist who said she’d never seen them before. We are all still unsure whether the AFOs really caused them or not, but she said not to put the AFOs on again until they heal. Since they look worse if anything (they are now raised rather than flat) she may never wear them again! We aren’t even putting shoes on her at this point.
Cathy’s still trying to find time to get Maria her glasses. Cathy has a lot of stuff going on at work plus Maria’s schedule is always busy. Manolis leaves Tuesday for five months, and that’s not helping anything.
Maria’s still trying to stand and walk, though she was less energetic on Thursday. She also took a four-hour nap (the first nap she’s taken on my shift for WEEKS) so she was probably feeling pretty puny that day.
The feeding therapist is completely shocked by Maria’s progress. We give Maria whole peas now and she can handle chewing them. Cathy was giving her pieces of baked fish the other night, and Maria did just fine. Maria seems to like the firmness, and she can’t cheat by sucking on them like she can some of the crunchy stuff we give her. She still gags now and then but does OK.
We now have a “prescription” for water. Maria, as you probably know, isn’t allowed any liquids that haven’t been thickened. The feeding therapist has graciously allowed us to give Maria up to one ounce of pure, unthickened water a spoonful at a time. It seems a little silly, but it will help her deal with thinner liquids. With her swallow study coming up in June, we want her to do well.
She is getting better with the straw. On Thursday I had her sitting in front of her Baby Einstein. She had her straw cup cradled in her arm and she’d watch for a while, then bend down and take a sip from the straw, then go back to watching. She did this over and over. Such a big girl!