As you can see from Cathy’s last entry, last Thursday was a busy one: Maria’s annual neurosurgeon visit, her bi-weekly feeding therapy, meeting the temp nanny, plus her vision evaluation for school. Exhausting for all concerned.
The vision evaluation was interesting. The woman was able to pick on Maria’s subtle cues and seemed well versed in CVI. Her daughter is blind so she has first hand knowledge. She teaches at the Foundation for Blind Children and works with the school system so she may be around Maria regardless of where she ends up going to preschool. It’s almost certain she’ll go to public school since she’ll get more from being around a mix of kids than just vision impaired kids.
The temp nanny has a two-year-old granddaughter she takes care of a few days a week. She’s going to bring her by on one of the days each week she takes care of Maria. It will be good for Maria to be around another child more, but we are a little concerned. Maria is a handful and watching her PLUS another little girl would be tough. Plus the house isn’t particularly child-proofed since Maria isn’t mobile, so Cathy has a little work to do before that first day. Since she certainly doesn’t have enough to do.
Cathy ordered Maria’s first pair of glasses last Wednesday. They will be ready soon, maybe even tomorrow. I’m definitely curious how Maria will react to them. Her regular vision therapist says that kids that age love wearing glasses and we’re hoping Maria won’t fight them.
Her foot blotches are still present, although a lot better. She gets fitted for a new set of braces this week which will be two pieces rather than a rigid boot. This will allow her to move her ankle. The orthotist thinks that was the problem with these. Maria hates being still so would wriggle her foot around and that’s why she got those funky marks.
This is another busy week. She sees the pediatrician tomorrow because she’s losing weight again. She has her full school evaluation Tuesday. She’ll have that MRI and EEG this week. She gets her glasses. Something else is happening Wednesday but I can’t remember what it is. Phew. I get tired just writing about it.