Maria had her EEG and MRI yesterday. For the EEG, Cathy had to keep her up until 11 pm Tuesday night, then wake her up and 4 am and keep her awake during the long drive to the hospital. Maria did her gagging thing during the EEG, which is good. We are pretty sure it’s not seizure related but this will prove it.
We went to see the neurosurgeon for followup today, though we saw only the PA. The doctor looked at the MRI and said it was a lot better and that her ventricles were definitely smaller than the last on in October. There had been a little bit of concern back that because that one showed her ventricles had grown a bit, which implied a backup of fluid. However the shunt was clearly working so he wasn’t too worried.
We won’t have the results from the EEG for several days.
Sue had said she was coming back today, but has had to postpone her trip back for another week or so as her mother took a turn for the worse. There’s also a bit of a soap-opera story about her mother’s caregiver, but suffice it to say that he is gone now so I’m not sure what’s going to happen there. So the temp nanny can stay on for a bit longer, but won’t be here next week so Cathy and I will have to take some extra duty.
I think the only appointment next week (other than the regular stuff) is her orthotics fitting on Friday.
As you may have noticed, I’ve added a little thing to the blog that automatically gives definitions to the acronyms if you hover your mouse over them. I’ll add to it as we come across new ones. It works even on old posts, which is nice. It’s a little intrusive though so I might tweak on it later.