Maria is probably going to get a new neurologist, preferably one who a) doesn’t think Maria’s having a seizure every time she takes a breath and b) doesn’t think that poking a hole in Maria’s throat is a reasonable response to her gagging thing. To be fair her current neuro is conservative about putting Maria on medication, but she’s just too blunt and negative. The fact that she didn’t even remember Maria at her last visit is the sign of a doctor who doesn’t really care about her patients.
We continue to wonder about the gagging problem. Yet another new theory is that it’s allergy related. I’ve always felt it’s somehow related to her nose and sinus. She rubs her nose a lot and nearly sneezes. She pushes the roof of her mouth and squints her eyes sometimes which makes me think she’s got a sinus headache. Claritin does nothing for her so we are going to try some new antihistamines and see if that makes a difference.
Progress is slow on her Swifty stroller. There is an appointment in late July to go try one and if we like it then they will order the real one. It’s probable that she won’t have it in time for school. The people at the medical equipment provider have been basically stupid, lazy, and rude so far. We have to be nice because we are going to need a lot from them. For example, once Maria outgrows size 5 diapers, we can get free size 6 diapers there.
I took Maria to one of the mall play areas the other day. I figured we’d sit in the seats outside the play area and listen to the kids. Unfortunately, this one had the seats for grownups INSIDE the play area. The kids were, of course, all shrieking at the top of their lungs and running by at top speed just inches away. Maria went back and forth between being interested and being overwhelmed. One woman brought her 4-year-old daughter over and told me how beautiful Maria was. Maria was a little unsure about the other girl for a few minutes, then she reached out and started petting her foot.
Just a little over 7 weeks until she starts school.
Oh, and I just realized – Happy Birthday, Maria!