Back to her old self
Maria isn’t sleeping the days away anymore. I noticed that her calves are freakishly long all of a sudden so I guess part of this really was growth spurt.
Her gagging thing seems less frequent…kind of. It comes in waves where she does it a lot, but some days she doesn’t do it much or at all. Often she just opens her mouth like it’s just a habit, but doesn’t start gagging or anything. We are still baffled.
She got her bath chair this week and we are going to see a demo of her stroller on August 1st. If Cathy likes it, they still have to order one and who knows how long that takes.
She starts school in just three weeks! We are still working to move all her therapy appointments to the afternoons. We were afraid we’d lose her music therapist since she is completely booked up, but she is going to try coming before school. PT is already in the afternoon and speech has found an afternoon slot. We lost vision, vision/hearing and OT for other reasons and I think OT is the only one we are going to try to replace. Who’s left? Feeding I guess and I’m not sure what’s going on with that.
We took her swimming in a public pool designed for special needs kids and adults. She seemed to like it and it wasn’t very crowded. Apparently it’s really dead on the weekends. We’d like to get her out swimming more but it’s hard to squeeze it into her busy schedule.
She goes into the hospital Monday morning for her seizure monitoring. We will also get a pulmonology consult for the heck of it and will try to get a BAER done the day she checks out as long as we are in the neighborhood.