Post-hospital update
For the first day or so she was on Trileptal, Maria had no gagging incidents. Since then she has had a few. They are less frequent than before but that “her heart could stop” thing makes them a bit more dramatic.
It’s hard to tell how badly the side effects are hitting Maria. She might be sleeping a bit more, which could actually be a good thing since so much development occurs during sleep. She definitely doesn’t seem to be seeing well most of the time, though she seems to be seeing better today than she has recently. It would be so much easier if we could just ask her how she’s feeling.
Yesterday she didn’t do that well with the PT, but she was very interactive with the music therapist this morning. Maria waved at her, shook her hand, and was trying to grab at the instruments.
Maria has a new OT starting in two weeks and of course she starts school the 13th. She’s losing her feeding therapist because she doesn’t have any afternoon appointments available. With the recent bad swallow study and the upcoming Vitastim therapy, we probably need to find another one.