Prediction
In 11 days Manolis will be home from Crete. Maria started her “episodes” 2 weeks before he left. My prediction is that within a month or so after he returns (probably sooner), she’ll stop. Everyone who reads this needs to believe it too to help it come true. We usually talk to Manolis right around the time Maria goes to bed. The past several times he’s been on the phone, she’s had several episodes. She only had 5 or 6 all day, we talked to him this evening for about 10 minutes and she had 3 or 4.
We usually try to go out once a day, but it’s been difficult the past several months because of all her seizures. I do hope they stop because it’s good for her (and me) to get out. My favorite thing to do was go to Barnes & Noble, have a cup of coffee and read books or magazines. Not such a good place to go with her when she’s loudly gasping for air.
We got a letter from Shriner’s–Maria was accepted for orthopedic treatment at no cost to us. Not sure exactly what they do or what to expect, but I’ve heard good things. Our appointment is in Salt Lake City in December. They come to Phoenix quarterly, but we’d have to wait until March, so I think we’ll keep the SLC appointment for the initial assessment, then see them in Phoenix after that.
Tomorrow I’m off to California for a few days for work; Andy and Sue have Maria duty, then Sue goes to Hawaii for her daughter’s wedding for a week. I’ve been really busy at work, so it’s going to be a challenge to figure out the child care thing. I called the “back-up nanny”, but haven’t heard back from her yet.