New neurologist
We saw the new neurologist and like him better than the last one. He did stick up for the other doctor of course but said he would be willing to take over Maria’s care. Apparently he only sees seizure patients and it could be good to have a specialist on our team.
His advice was to stay the course: continue the Depakene until we reach the median dose then we’ll talk about taking her off the Trileptal. The Depakene seems to be helping despite an odd lapse recently. For a few days she had many episodes, then it slacked off again. Overall though she’s down to just a few a day. The neurologist said that Maria is already showing that she will be a challenging patient for seizure control and that we may never get them down to zero, but we’ll get them as low as we can.
Today Maria was supposed to have a barium swallow but woke up with chest congestion from a cold. Cathy called and they said we’d have to reschedule it for October 7. So instead of missing school for the lab test, she missed because she was sick.