Maria had her usual visit to the eye doctor Friday. The good news is that her vision is continuing to improve. However we have a fun new label to put on Maria: legally blind. OK, I suppose that’s not really a huge surprise, but… He also mentioned quite conversationally that people who are nearsighted tend to get detached retinas if they rub their eyes too much. It’s not a big chance but we’ll add it to the big pile of things like liver failure and seizures that could stop her heart.
At the end of the appointment Maria reached out to hug him – she’s been hugging people a lot lately. He just melted. It was so darn cute. Everyone absolutely loves her.
This afternoon Cathy and Sue took Maria to see the Doodlebops. Maria was kind of cranky this morning and (of course) didn’t nap so I’m not sure how it went.
The botox seems to be helping, though it’s hard to tell. The only thing I’ve really noticed is that I can get her AFOs on more easily. The Vitalstim certainly seems to be working. She coughs a lot less when she eats and seems to drink better. When she coughs normally, it’s more productive. She was trying to clear her throat today and I don’t think I’ve ever seen her do that before. She’s done three weeks so two weeks are left. We are SO THANKFUL we were able to find someone to come to the house – remember it’s 4 days per week.
I think it’s the end of next week that Maria heads to San Diego for the audiology consult that had to get postponed last time. I don’t think there are any other unusual appointments coming up.