Maria finished her 1st week of her 2nd year of school. Her class has 14 kids, 11 with IEPs (individual education plans for those kids who need extra help) already!! Last year they started with 8 kids and it grew from there (the kids in the area can attend the school if they qualify when they turn 3, they don’t have to wait until the start of the year).
She started off really well! Slept well Sunday night (which isn’t usual for her, especially these days); did well in school Monday; slept well Monday night, did well Tuesday. Slept a little less well Tues night, much worse Wed night; rubbed her eyes a lot Wed & Thurs in school; seemed overwhelmed. I don’t know if it’s just getting used to being back in school (if so, then why did Monday & Tuesday go so well?), or if she misses riding home with her Sue Sue (nanny), or what.
Her blepharitus is acting up. We’ve been putting Erythromycin in for more than a week, now we’re stepping it up to Tobradex (steriod, so not so good to use too much). According to Wikipedia, blepharitus is an occular disease characterized by inflammation of the eyelid margins. Nice huh? Her inner, lower lids get so deep red, it looks like blood. It’s apparently very uncomfortable and, of course, another chronic condition. Adding to that, her glasses have been bent so many times, I don’t think they fit well anymore and she’s not enjoying them as much as she has in the past. Fortunately, Uncle Andy is going to go way the heck down to the place where we got them so they can adjust them and see if they’re salvageable or if we need to get her a new pair.
On the bright side, the seizures seem to be under control since we increased one of her meds. School hasn’t affected that (and I don’t expect it to). Her itchy eyes have made it very difficult to do any walking. She’s been standing ok, and still likes to hold our hands to pull herself to standing, but I do feel we’ve lost some ground from her stellar performance last week.
Walker & stander updates: nothing to report. still. yet. Monday I’m going to call Preferred Homecare again and find out where the walker is.
Manoli’s friend Nikos came over a couple days ago and Maria was petting his face. I got a picture of it and I swear it looks like she’s looking into his soul to try and heal him (he’s in the beginnings of a separation or divorce). Very sweet picture…