Halloween
I was in Colorado for work the week of Halloween, so Sue went to the school Halloween party with Maria. She said Maria was raising her hands, waving them, while they were in the parade through school; said Maria really enjoyed herself. I got home on Halloween in time to get Maria’s Japanese princess dress on and do her “make up”. She LOVED the make up! Sat real still while I put powder on her face, eyeliner, and lipgloss. I think she’s going to be a make up girl… Manolis & I took so many pictures trying to get a good one, that she was exhausted by the time we were going to go out Trick or Treating. We started at the next-door neighbors’. I sat down, they gave me a beer, Maria had her milk, we never got any farther. Manolis was cooking salmon, so he brought over plates of salmon and our basket of candy, and we just sat there on the driveway in the 80 degree temperatures, ate, drank, and gave away candy.
We went to the eye doc Monday. Maria’s eye muscles are still a bit weak and he thinks he may have to do surgery to strengthen the muscles. The way he said it, with such confidence, that it didn’t totally freak me out like it should have. We just need to patch more, I guess. On the bright side, her prescription is still fine (I’m surprised), so new glasses aren’t needed yet.
She’s been getting very intense with her hands. None of us can figure out what’s up with that. It’s like she’s desperately trying to communicate with us but doesn’t know how.
Speaking of communicating, we went to see Sue last night (she’s having her surgery this morning to fix the CSF leak) to wish her good luck; Maria had hardly eaten all day, it was almost 7pm, and we needed to get home to feed her. Sue asked if we wanted to come inside and see the kitchen and play for a little bit, and Maria shook her head no! I swear it really seemed like she was responding to Sue’s question! Wow!
Today, we have an appointment with the “UFO Lady” (for Maria’s AFOs). It will be her 3rd pair. I have no idea how I’m going to find shoes for these. I think I’ll have to go the expensive special shoes route….