Maria’s been doing pretty well lately. She’s developed a rash around her mouth and nose. I know she’s gotten it before but I can’t find other mentions in the blog. Our best guess is it’s because she sucks her thumb. Her fist traps the moisture and heat against her skin and when it gets hot she gets a kind of heat rash. I put some skin healing goop on it (organic, natural, blah blah blah) and it seemed to help but every time she rubs it, it gets inflamed again.
Manolis just finished putting some pullup bars on the wall. We are hoping Maria can use them to get up into a standing position. She’ll need assistance but it will be good exercise for her. Maria used them for a few minutes and seemed to like them but was unsure what to do. We’ll have to work with her some more before she gets it. I’m curious what the PT will think.
We continue to try to get the augcomm device going. We went to the school to have her school speech therapist help us with the overlays but she was, um, less than helpful. She understood the software a bit more than we did but was baffled by simple things like printing the overlays out. Maria’s normal speech therapist was supposed to be there which would have helped, but she got sick. That was unfortunate timing because she’s off for the next two weeks to get married. These silly therapists who think they have the right to personal lives!
Maria has outgrown her crib and Cathy’s been trying to find a good big girl bed for her. It needs rails but beds with rails are “special needs” beds so are much more expensive than normal beds. She finally found a good one at Ikea that they are getting today so Manolis can get it put together before he leaves.
The last day of school is Thursday then they are off on their cruise. As soon as they get back, Manolis heads back to Greece for four months. It’s going to be interesting.