Sick again…..

Poor missy Maria is sick again. She’s been on-and-off this week, but yesterday was bad. Her breathing was not good, she was very fussy–I would say inconsolable–and lots of kicking and moving, almost panicky. All bad signs. I called the doc at 11:30am, they could get us in at 2pm. Doesn’t sound like a long time, but it seemed like forever. We almost took her to the emergency room, but decided to wait for her appt. We couldn’t see her regular pediatrician, but did get to see the same guy who saw her a month ago. Her pulse ox (oxygen level in the blood) was 97, which is damn good for what we thought. It really puzzled the doc. He saw how concerned we were and how uncomfortable she looked and was confused. We got another chest xray, which showed something in her lower lungs. He said either it was fluid or that she wasn’t breathing to the bottom of her lungs. Since he heard something when listening to her chest, he decided to put her on antibiotics, even though she has no fever. Now she’s probably going to get another yeast infection. It’s a vicious cycle!! Maria single-handedly had her mom, dad, uncle, nanny, and aunt pretty freaked Friday (freaky friday).

Today, Saturday, she’s somewhat better. We kept the appt with the new speech therapist. It’s a clinic-based appt, so we go there at 11am for speech, then have to go back at 3pm for occupational therapy. It’s not too far away, but still kind of a pain. We’re going to work on either getting them back-to-back or something. As it is now, we can’t do the Jin Shin Jyutsu anymore.

The new speech therapist is experienced, knows a lot of people in Maria’s school district, is energetic, has lots of ideas, tried hard to get to know Maria, doesn’t listen very well to the mama, and has yet another idea for what to do with the Tech Talk. She wants it to be 2 pictures, each picture taking up half of the machine (which equals to 4 squares). She thought we could either put the same picture in all 4 squares of the left or right half, or 1 big picture in each half, which would be broken into fourths by the cover piece — don’t know if that makes sense. Big Sigh!!!!! I’m going to try and get the home speech, school speech, vision teacher, and possibly hearing teacher to all get together and decide once-and-for-all (again) what the hell we’re going to do with that damn device! She said the DDD (state agency) allows us to change devices after a while if we decide the one we got isn’t working. However, the state is in such dire straits financially, I have no doubt they will turn it down.

I ended up ordering a laminating machine and am now printing on my photo printer instead of the laser printer to cut down on the trips to Kinkos. But it seems that every time I make a new set of sheets for the device, we come up with another scheme and I have to do it again. Very aggravating (and expensive) for me and i’m sure confusing for Maria. I somewhat like what we came up with last time–pink background, 4 pictures with “I want”, “all done”, and 2 activities to choose from (e.g. bite and drink, or book and ball, etc). Oh my.

When we went back today for OT, Chris had Maria ride the bike again, and she did great! We’re supposed to get our quote on Monday for the Freedom Discovery bike we want, so we can get the website set up and start getting the bike paid for. Maria even pedaled the bike by herself a couple times. You can tell she loves it!!

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