As we may have mentioned, one of Maria’s therapists is convinced Maria has Rett Syndrome, a neurological condition marked by repetitive movements like hand wringing. I read about it and instantly could see Maria doesn’t fit the profile at all. The response of course is it could be an atypical case. However both the neurosurgeon and the neurodevelopmental pediatrician say hydrocephalus and Rett Syndrome are mutually exclusive. The neurological profiles are incompatible and you simply can’t have both. Since we know Maria has hydrocephalus, that means no Rett Syndrome.
Maria’s breathing has been a little off. The school nurse has reported her blood oxygen has been now and then and they’ve given her breathing treatments. We are giving her breathing treatments at home occasionally and we might take her back to pulmonologist. Because we need another complication.
In that vein, Sue has another blockage so is going to have to get a second stent. Since Manolis is here this time plus Maria’s in school, it will be a lot easier to cover her shifts. We are hoping she is back to work before Manolis leaves this summer. Plus Cathy has two major surgical procedures coming up so things will be interesting for a while.