We have been blissfully seizure-free for months and months. In September or October, the teachers thought they saw a few, but we didn’t, so I didn’t get too worked up about it. We sorta have thought from time-to-time that perhaps we’ve seen one or two here or there, but always short and not repeated and not for sure, so maybe yes, maybe no, but no big deal.
But now, there’s no question. I can’t remember what happened last week, but I do remember that she had 3 seizures on Saturday–1 before speech therapy, 1 during speech therapy, and 1 after occupational therapy. Then Sunday, I was gone for 2 hours and she had 5, so Andy gave her a Clonazapam. By the time I got home, she was zonked and zoned and oh, man, how I hate to see her like that.
Monday was good. Tuesday I had to pick her up in the late morning from school because she had 3-4 seizures; they gave her a Clonazapam, so we took her home to sleep. Wednesday was good. Thursday she had 3 or 4; so Manolis picked her up near the end of the day — she fell asleep at school, so although 2 of them lasted 45 seconds (which is very long for her), we didn’t give her the Clonazapam, and she seemed good last night. In fact, Manolis took her for a bike ride after he picked her up. She ate well, slept well. Was a real stinker this morning with her medicine–worse than ever! Does she not understand that she needs that medicine??!!
All I can say is thank goodness next week is Spring Break — I think we all need a break! Too bad Maria and/or I and/or Manolis has 1-3 appointments each day during the “break”. At least I’ll get my icky dentist appt out of the way, and hopefully they can start to figure out what the hell is going on my pelvic pain BS. We’ll surely see that Manoli’s heart and blood pressure are doing great. Maria will get a couple Jin Shin Jyutsu appts in to hopfully calm all the craziness. Quick check-in with the pulmonogist (of course now her lungs seem to be clear, thank goodness!). And the appt with the new physiatrist. See, just another simple week in our crazy life!!
One exciting thing about this past week is they finally hooked up our solar! So in 3 days, we’ve generated $19 of electricity and offset 138 lb of CO2 — how awesome is that?!
(So, what’s the “break through”? When you’ve been seizure-free for months [usually because of medication] and then start having a few seizures, they call them break-through seizures.)