Tuesday or so, we increased Maria’s meds again from 5 ml twice a day to 4 ml three times per day. Tuesday afternoon after school, hippotherapy, half a session of home PT, and 2 4ml doses of the medicine, Maria fell asleep. She slept from 4:30-9pm, drank some milk, took her 3rd dose of the white medicine, and ever since then, she’s been much better! She’s been cheerful, not sleepy, few or no seizures, no calls from school. She was a little crabby after school today, but so was I. It’s Friday. It was a long week.
It’s hard to believe we increased “the white medicine” by 250% in a mere 2 months!! Maybe we finally found the right dose?
Nanny Sue only worked about an hour this week. I’m a little worried about the summer. If Maria doesn’t go to summer school, then Nanny Sue is supposed to be here 10 hours/day for 3 days/week. These days she’s having trouble with 12 hrs/week. She assures me it will be fine, but I may need a back-up plan. In preparation, I think I’m going to go see The Back-up Plan (movie) this weekend….but I digress…
Now if only my crap would clear up. Today was a particularly rough one.