It is never a dull moment in this household! Within hours of my return from Oregon last week, I started to feel a cold coming on. Within hours after that, Maria started getting something that has settled in her chest. Took her to the doc Friday, who wasn’t too concerned, gave us an Rx for steroids, which I didn’t fill until Monday after the school nurse listened to her.
Grandma & Grandpa came to visit from Albuquerque over the weekend. Hardly ever left the house, but had a nice visit anyway. I hope they didn’t go home with anything more than a few brownie bites from us. Uncle Andy and Manolis both came down with something too.
Maria came home early Monday (as I predicted), but stayed at school all day Tuesday (which I did not predict). This morning I suctioned her minutes before the bus came; she was making a noise like crying, like she was very uncomfortable, but stopped after I suctioned her. I was ready to tell the bus driver I was keeping her home. She was very upset and agitated and crying/moaning/yelling at school too, so she came home very early today. The nurse sounded worried and a bit frazzled because the last days of school are hectic and Maria needed a bit more attention than they could give under the circumstances.
I called the pulmonologist. They can’t get us in for 2 wks, but the nurse gave me some good advice, including making an appt with the pediatrician for the morning. Manolis said Maria was doing great, happy, breathing well. Ahhh. Then very shortly after, I got a panicky call from Nanny Sue saying she thinks Maria needs to go to the ER. I said we have an appt in the morning. I don’t think that’s soon enough. We could get a chest xray this afternoon to see if it’s gotten worse. I think she should go to the ER rather than driving all over town. I could hear her (Maria) struggling to breathe in the background, so I left in the middle of my meeting, called Manolis on the way home, and took Maria to the ER.
She didn’t look good to me. Lethargic, pale, clingy, sick eyes. We got seen in the ER within minutes–literally. When they hear hydrocephalus, shunt, cerebral palsy, seizures, asthma, then she gets the princess treatment. Of course upon her initial exam, the felt it wasn’t life-threatening, so that’s when the waiting began…. We gave her a breathing treatment, then waited a very long time for chest xrays. The ER docs saw aspiration pneumonia in the xrays, but had to wait for the radiologist to read them. S/he didn’t comment on that part of her lungs, but the ER docs were convinced that’s what it is. Her blood oxygen was in the high 80s-low 90s, and they said if we wanted, they could justify putting her in the hospital on oxygen and IV antibiotics (exactly Sue’s prediction), but I said, nope, we’ll take her home. We watch her very carefully and will bring her back if anything worsens. 4 1/2 hours later, we’re on our way home. Manolis got to the pharmacy with only moments to spare to get her antiobiotic, while I tried to feed her. ha!
She slept through much of it this afternoon, and is sleeping peacefully now. So much for the last week of school. She will also miss her last day of school, but I think she’d rather stay home anyway. Poor baby! The pulmonologist nurse said we should give her breathing treatments (which take at least 10 minutes) every 3 hours round the clock. Yeah. Tomorrow is our neurologist appointment. Funny how the past week of breathing issues has erased the past 3-4 months of seizures right from my consciousness. I’m going to have to get my you-know-what together before going to to doc so it’s not a wasted trip. As I said, never a dull moment.
Oh yea, and I got the 2nd email this morning from British Airways; this one cancellling the 2nd leg of his trip Saturday. I was on hold for almost 2 hours to rebook the 1st leg. Aaaarrrgh!!! Piss poor customer service!!! Manolis finally got through, after more than 90 minutes on hold and got good connections on the same day, but 12 hours earlier. So now we get to leave the house at 4:30a. That should be fun! The thing that keeps me going is he really needs a break from all of this.