We took Maria to the Ringling Brothers circus yesterday and she seemed to like it. She watched the performers, stood a lot during the performance and generally had a good time. The performance was VERY overstimulating with lots of noise and lights and sparkly bits, but she never seemed to get overwhelmed. Usually she’ll roll her eyes up into her head when she’s had too much but she never did. I think she got bored before it was over, but it was a good experience overall.
We were going to go look at wheelchair vans after that but they were closed so we’ll have to try another time. Cathy looked at their website but of course they don’t list prices so it’s hard to shop. We need to do that soon because time is slipping away and Maria’s just getting bigger. I’m not sure what the status is on the new wheelchair but these things take months so who knows?
The neurology nurse agreed it was strange the doctor canceled the PEMU but he’s out of town for a while so we’ll have to wait until he gets back. Meanwhile we’ve almost certainly lost our spot which is annoying because it was perfect. Next month Cathy has her surgery, then after that it’s school. Maria’s seizures do appear to have calmed down and she’s sleeping less during the day. Maybe we can finally start the new meds we got over THREE MONTHS ago.