We’re at the end of our 2nd day at the pediatric epilepsy monitoring unit. So far, no seizures. I’m not surprised because Maria hasn’t had any seizures since “The Big One” or “The Event”, as it’s sometimes called. Her neurologist has seen inter-ictal spikes, which just basically means she’s prone to seizures, as I understand it. He doesn’t want to stop her meds, but I hope he decreases them some because we need to see what her seizures look like now, and if she never has one, what are we doing here and how long will we need to stay?
Maria wasn’t at all happy Fri morning when we came. She hasn’t been eating or drinking so great, but she did love the Taco Bell bean burrito and her usual organic milk-Pediasure mixture I brought her this eve. I hope she lets me get a little more sleep than last night. Between the bed being extremely uncomfortable and Maria continually grabbing wires — I got very little sleep! The one time I did sleep she managed to pull her little turban thing almost off, so now her hair is a mess! It’s so hard to be fashionable in the hospital!
Uncle Andy came today to give me a little respite. I took a shower, a 1-hour nap, and got a 90-min massage. I feel almost completely refreshed. My little “girlie problem” has been raging the past couple weeks. In a mere just-over-two-weeks, I’ll be back here getting my little girlie problem taken care of, with my body parts still in tact. I hope. We’ll see! After 8 months of this crap, I’m ready for it to be over!! Regardless, it’ll be good to see my sis and friend, Monica!
It’s been an international weekend anyway — Maria’s day nurse is from Russia, night nurse from Ghana, and my massage therapist from Yugoslavia. They’ve all been great so far…