A very bad thing happened last night. Maria got an extra dose of one of her meds. I thought I’d already given it to her and said something, but the nurse assured me it was time. Like the sleep-deprived mom that I am, I gave it to her and then called Andy to confirm that she did indeed have her evening dose. Why didn’t I call him BEFORE giving it to her? Dunno? I called the nurse into Maria’s room and told her what happened, she checked the chart, and saw that I was right. It’s along story why it happened — the usual perfect storm where 5 things in a row go wrong. She called the doc who said she’ll be ok and we’ll cut the dose a bit in the morning. She had to write an incident report. This morning the doc apologized on behalf of the hospital and said he hoped it didn’t damage her career. Yikes!!! It is pretty serious business….
I slept in Maria’s bed most of the night. I think she felt like crap and wanted me near. Neither of us got much sleep. Her heart kept racing and setting off the monitor alarm. The doc assured me the extra med didn’t cause it. So, why only last night then??
This morning the doc said Maria still hadn’t had any seizures, which he said gives him more good info. We agreed to halve one of the meds and see what happens. He’s not crazy about that drug, he would have given her another one mor targeted to her type of seizure. I want to know what to tell the teachers when they say she’s having several seizures daily. I want to know what her seizures look like today. I want to know what to do when Maria exhibits her behaviors or seizures or whatever. All these answers take time. We will tackle them 24 hours at a time. To an untrained eye, Maria’s eeg looks different to me today than yesterday. We’ll see what he says tomorrow.
I was planning to go to work this week and have Andy or Sue watch Maria during the days, but if I don’t get any sleep, I don’t know how I can work, and if she does start having seizures, it’d be best if I were nearby.