Yesterday was a big day–Maria’s daddy had eye surgery (the whites of one eye was growing into the iris, don’t remember what it’s called) and Maria was P.E. student of the day!!! I don’t know what that means, but it’s very exciting!
Manolis is doing well. His doc said he looked good at his follow-up appt today. He has to take it easy for a week or so, we can’t travel for 2 wks, and I think he looks like he’s in pain or discomfort (tho’ he won’t admit it); but in the scheme of things, he’s doing great and all is well.
Although things have been not super great with Maria (not sleeping well, sticking her fingers down her throat, not eating so great, more tired than usual), she still seems to be doing great in school and they seem to love her and take good care of her. For example, a recent email from her general ed teacher said “P.S. Maria couldn’t be more loved in this room. The kids look forward to her being in here and are bummed when she is not! When she had that rash and they couldn’t touch her, they were going through withdrawal!” She’s in a 1st/2nd grade classroom and the kids line up to read to her. Her teacher even got special permission from the school principal to have 2 extra recesses per week in the afternoons just so the kids could play/interact with Maria with structured games. I think that is such a thoughtful and wonderful thing of her teacher to do. This year is similar to her 2 years in preschool as far as integration and acceptance from the other kids. Kindergarten was ok, but not nearly so welcoming.
This weekend we’re going to the Shriner’s Christmas Party. I hope to get a picture of Maria with Santa. I’m a little apprehensive about going, but feel it’s important, because of Santa and seeing other kids who are similar to Maria, and because I think I’m going to ask them to help us pay for the wheelchair van…..so it’ll be good to remind them who Maria is and how cute she is!
Still no wheelchair. It’s been more than 6 months since our first visit to be fitted for the new chair. It was back-ordered until Nov 24, but when I called this week, they hadn’t gotten it yet. They were supposed to return my call with an update, but it’s been 2-3 days, and I haven’t heard back from them. They were nice people, but very unhelpful. Never any updates, unless asked to by the liaison working with us from Accordant Healthcare (part of Blue Cross). The liaison is a nurse and is AWESOME! She calls me frequently and calls the medical equipment company often to ask them what’s the hold-up. Oh well, I guess it’s just prolonging our van purchase (which is a good thing!)