The optic nerve issue is weighing heavy on my mind, but her neurologist called me today to discuss and he said he’d call the neurosurgeon. He agrees this isn’t something we can drag our heels with. To possibly complicate matters his office is joining with Phoenix Children’s Hospital on June 1st, plus the people at PCH in one building are moving to the new building during the same timeframe, so it’s perfect timing for things to slip through the cracks. He gave me some advice on how not to allow that to happen. He’ll order a full brain MRI with sedation, with and without contrast so we can see how her white matter is doing. We’ve known that she’s a little shy of white matter, so we’ll see how it looks now. Concurrently, the neurosurgeon is the one to order the shunt-tap overnight stay. Of course, I’m scheduled to go out of town next week and it’s a fairly important trip that I’d very much hate to cancel.
Ok, about Easter — on Saturday a church sponsored an Easter Egg hunt at Maria’s school, so we participated with the 4- to 6-year old age group. Maria’s first Easter Egg Hunt! All the kids started at one end of the grass. Fortunately, where we parked, we were at the tail end of the grass, so it wasn’t crazy, busy, chaotic. I got Maria out of her chair and stood her up in front of a bright pink egg. She immediately crouched down and grabbed the egg on her first try!! It was so awesome to see! (see, her vision seems fine….). A lady came up to me and said she saw I had a camera so if I wanted, she’d take our picture. She did. She asked if we had a bag, I said no, we just wanted the experience, we’re just going to grab a couple eggs. She said she happened to have a bag, so she gave it to us and I put the couple eggs in it. Then a little boy came up with a basket full of eggs (you could tell he really wanted to fill his basket); he looked at Maria, he looked at his basket, he hesitated for a minute and put some eggs from his basket into her bag. Then he went around and grabbed a couple more eggs off the ground and put them in her bag. Then he grabbed a couple more eggs from his basket and put them in her bag. It was the sweetest thing!!! His dad was nearby and I let him know how sweet his son was. It was so cute!!
Then we went to the table to turn in her eggs for candy. The lady gave Maria a bag of candy, then gave her another bag of candy for good measure. From there we saw the Easter Bunny and got a couple photos of him/her with Maria. It didn’t appear that s/he was comfortable with kiddos like Maria, but I got some cute pics anyway! (my camera broke, so I was using Manolis’, sure do miss my camera…but I’ve never really bonded with it, it’s a Canon S3IS or something like that, so I’m using this as an excuse to buy a Nikon with some of our tax refund, nice, huh?)
After the Easter Egg Hunt, we grabbed Maria’s daddy and went to see Rio (movie). It was cute, but I wish there’d been more of the flying, singing, colorful birds; and I really wish we’d gone to the 3D movie, rather than the 2D version. (I’m going to go to the 3D version, love those!). Maria was mildly entertained, but tired. Not as big of a hit as I thought.
Easter Day itself was low-key. Uncle Andy came over. We had lamb and potatoes and salad. Quiet, simple. I got some paperwork done, worked out. Maria did some walking, standing, the usual.