Maria’s had a busy week. She turned 7 on the 23rd and she lost both front teeth within a few days of each other. Fortunately she managed to get both of them out herself. I found one in her bed with some blood on her pillow, in her mouth, on her thumb. Yikes. The other one was hanging precariously for a few days. We kept trying to yank it out because it seemed to be bothering her, but we couldn’t get it. Then one evening, she was chewing on her hard plastic medicine bottle, I heard a little yelp, and there it was. Such a good girl.
I feel bad about this year’s birthday. I did manage to get a few little things for her classmates–crayons, magnifying glass, and a stencil for each kid, and a bucket full of musical instruments (cheap, plastic ones from Party City) so they could have a band. They had a little party (which of course the parents can’t go to because they don’t let the parents in the class…) at school, and the kids on the bus made her a card. We saw my friend, Monica, and her husband, Ted; they were in town for a wedding. They gave Maria one of those books you record. It has magical princess music on every page–very cute; and a fairy card that also has music. Sue gave her lots of clothes, as usual, and a cool huge card where a butterfly jumps out at you and a kid yells “Happy Birthday!” It is so cute! And of course, our buddy, Elvin (my old boss), and his wife gave her a fab card. And she got some $$ from her grandparents and a couple others. Thank goodness for friends. Manolis got her balloons and I got cupcakes, but that’s about it. We didn’t even really celebrate until the weekend, and then mostly just for the photos. Ahhh, the good and bad of having a child with severe developmental disabilities…
I guess summer school is going ok. They are all starting to fall under the magical Maria spell, and adoring her, and saying very sweet things. I expect nothing less. But it still bothers me that I’m not allowed to see her in class……I guess it’s just getting used to something new. She’s doing better with eating her snack and drinking all her milk, so it seems that she’s feeling more comfortable with them and they with her. Only a couple more weeks anyway. It’s a good thing for them that I’m so dang busy at work.
I filed the appeal for the bath chair with the state. They have a month to respond to the appeal. I think it’s pretty good, but I thought the one for the stander and walker was awesome and they still denied those (until I called the newspaper, that is). Now they’re trying to cut respite in half. They had 2 meetings on Maria’s birthday. I was going to go, but didn’t have the energy. Good thing, sounds like it was completely packed and very emotional. Not sure I could’ve taken it… Ahhhh Arizona, I really like living here, but the politicians do so many stupid, thoughtless things.