Archive for January, 2014

New Year, New Wheelchair

Sunday, January 26th, 2014

It’s 2014. I was planning on updating the blog more often, especially since I sent out the address in our Christmas cards, but here we are a month after the previous post…. Hmmmm. Oh well.

Maria got a new wheelchair at the end of 2013. It’s small, it’s cute, it’s pink. We love the seat cushion, it helps her stay well-positioned, unlike her previous chair. But, it looks too small — it’s fine for now, but I’m not sure there’s room for 3-5 years of growth, especially if she grows like she’s done the past couple years! In fact, I call it “the Mini Cooper of Wheelchairs” — small, cute, fun, but not a lot of room for expansion.

The way it was delivered and set up originally, it wasn’t quite set up right. It’s been tweaked once, which helped. More parts have been ordered (like the tray that they forgot to put on the order, and a different upper body harness–the one she has now seemed like a good idea, but doesn’t hold her in well enough, especially in the car. And in fact, I bought a [matching pink] dog collar to hold the straps in the back so they don’t fall off her shoulders.). When all the parts come in, we’ll meet with the PT who did the seating evaluation and ordered her chair to see if it’s going to work or not. I sure hope they are willing to order a new chair or larger frame or whatever if we decide this one isn’t going to work. Otherwise……..I’ll be able to practice my crucial conversations tips for the talk I’m giving at the upcoming Cerebral Palsy Conference.

Maria’s been doing great! Healthy, happy, doing great in school, loving hippotherapy. We’re still looking for another PT (we’re approved for twice a week), and another speech therapist (her current one is twice a month, I’d like to find one to fill in the other 2 weeks) We’re not going to soccer as much since Manolis got a job, it’s harder for him to be there and I wanted soccer to be his thing with her. We might go today. We’ll see. One of the issues with the new chair is the handles are very low, so you have to stoop a bit to push it (so dumb!!!), so we’ll see if my back can take it, or maybe one of the shorter kiddos at soccer will volunteer to push her.

We visited Maria’s grandparents between Christmas and New Year’s. Maria sure loves her grandpa! I enjoy seeing them together. Although the weather cooperated, it’s just too darn cold there in the winter (compared to balmy Phoenix, where we have oranges, tangerines, and lemons in the backyard right now ready for eating…).