DME Woes. Again. Still.

Maria is 10 years old. In her short life, we have gotten wheelchairs, standers, gait trainers, bath chairs, and other stuff. Every piece of equipment is needed for her quality of life (and the quality and safety of us, her caregivers). Every single piece of durable medical equipment (DME) is a struggle. The state (Medicaid insurance) denies almost everything the first time. Sometimes they deny it again. Every time I try to figure out how to make the process easier. Most every time it doesn’t matter. They change the process, they change the players, they change the requirements. Never have I been able to get anything in writing. Never have any of the people in the vast network of agencies and organizations and companies been able to answer my questions or help facilitate the process. Don’t get me wrong, we have found a lot of very nice people, but they appear to be as clueless as I am as to what to do or not to do to speed along the process. It is ridiculous!

As I’ve said in the past: we aren’t doing this for fun, we aren’t doing this because we are bored or just to see what we can get. All we are doing is trying to keep Maria safe, healthy, and not regressing. I’m sure they are trying to save money, but are they really saving money with all the effort it takes from doctors, therapists, and others to work on the appeals?

When Maria was 3 years old, I resorted to calling Laurie Roberts, a newspaper columnist. It worked. Do I need to do that every time? Should I contact the (new) governor or my congressman? They’re all Republicans, so I’m not sure how sympathetic they’d be. I just don’t get it. It would be bad enough if I never asked anyone what the process is, but I do. I ask every single person we deal with what to do, who to contact, what to include. So what the hell?! Sooooooooo aggravating!

Currently we are trying to replace Maria’s wheelchair and stander. They both got denied, for different reasons, niether makes sense. I spent hours, literally hours, on the phone this week trying to get to the bottom of it. I think I know the next steps, but it will take many more hours of calling, coordinating, and preparing documents. I do have a full time job. Did I mention this is aggravating?!

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